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Community

Dedication. Expertise. Passion.

We are fortunate that there are people & orgs who advocate for change & take a critical stance on the systemic injustice for those with ME/CFS, Long Covid & those still vulnerable to the pandemic. To explore their work please have a mosey below.

A black and white image of Dr Jo Hunt. It is a head shot she has blonde shoulder length hair with a fringe, dark, rectangular glasses and she's looking straight out.

Healthcare Hubris Blog

Jo Hunt

Home to the premier site of critical psychology. Analysis of the biopsychosocial school and its foray into hubris. Covering medically unexplained symptoms, ME/CFS & Long Covid

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A black and white photo of Prof DianeO'Leary. It is a head shot with a dark bob parted at the side and her head is tilted to the right.

Academic

Prof Diane O'Leary

A must read for anyone interested in the systemic problems with medicine's approach to symptoms with psychological causes particularly in women. Clarity in the dualism morass.

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A black and white image of Dr David Tuller. He is against a black background and hehas stubble and is wearing a baseball cap.

Academic

Dr David Tuller

Academic at the Center for Global Public Health at the University of California, Berkeley, David counters & debunks dubious research in the fields of ME & Long Covid.

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A black and white image of Professor Brian Hughes. It is a studio head shot. He has a dark shirt on, a greying beard and dark rectangular glasses. Hishair is dark and short at the sides with more length on the stop styled to the length.

Academic

Prof Brian Hughes

Ardent advocate for pwME Brian has challenged the established false model with academic brilliance. A Prof of Psychology he bought light to the profound changes needed for the ME NICE Guidelines.

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A black and white image of Dr Rae Duncan. It is a selfie with her smiling and she has long hair parted at the side. She is smiling at the camera.

Doctor

Dr Rae Duncan

A leading voice in the medical profession about the short & long-term dangers of Covid19. Her video presentations about this subject are a must watch. Rae stands up for protections & research for CYP.

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A black and white photo of Jen Brea. She is against a white background andis wearing a black tshirt and is smiling at the camera. She has swept back afro hair that is shoulder length.

Film maker Story teller

Jen Brea

Jen's documentary, Unrest, & TED talk have been prime movers in shifting the paradigm about ME. She co-founded #MEAction a tour de force of pioneering activism. It is home to the #MillionsMissing.

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A black and white image of Cort Johnson. He is outside and wearing a shirt and jacket. He has stubble and has shoulder length hair.

Health Rising Blog

Cort Johnson

Outstanding blog on the latest research & treatment for MECFS, Long Covid & Fibromyalgia. Readable & insightful. The place to keep up-to-date. Some of the best journalism for ME & LC.

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Black and white image of Prof David Putrino against a grey background. It's a head shot with him in a white coat, beard and close shaved hair and looking to the left.

Putrino Lab

Prof David Putrino

Leading the way in safe rehabilitation & biological Long Covid research David is a stalwart supporter & ally of the community.

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Black and white photo of Dr Binita Kane. She is against a grey background and its a head and shoulders shot. She is wearing a black top with a white  flower. Her hair is tied back and she has a light smile.

Doctor

Dr Binita Kane

Inspired by her own family's experience with Long Covid, Binita is a pioneering physician & advocate for paediatric Long Covid.

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A black and white photo of Dr Claire Taylor. She is standing against a backdrop of a river and it's a head & shoulders shot. She has long blond hair parted slightly to the left and she is smiling and wearing dark eyeliner.

Doctor

Dr Claire Taylor

One of the only Drs in the UK to start an effective Long Covid clinic. A pioneering physician who routinely stands up for & treats Long Covid, ME, MCAS & POTS.

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 A black and white photo of Tom Kindlon. It is a head and shoulders shot against a tiled background with 2 large flowers. He is wearing a white tshirt and a dark baseball cap. He has rimless glasses and a light stubble.

Patient Advocate

Tom Kindlon

Tom has been an exemplery researcher for pwME. Publishing with extensive analysis using a critical stance of harmful ME research. Known for countering the PACE trial.

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This is a black and white image. It has a brown haired man with a moustache and beard lying down on a dark sofa with stylised plants. He is covered with a blanket with his eyes closed. The text reads 'Dialogues for a neglected illness. Wellcome Public Engagement Fund Award 2018-21

Video Project

Dialogues ME/CFS

Outstanding resource for education about ME/CFS for medics & the public. Funded by Wellcome this is the place to go to understand symptoms & history.

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This shows an anonymous black sillouette of a woman against a white background. This is because Margaret Williams is a pseudanym.

Blog

Margaret Williams

Key archive on the history of ME/CFS. A series of articles from 1986 to the present day. Evidence & anaylsis of the machinations of the Wessely School . 

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This is a 9 photo montage of team clots in black and white. It features a bearded Prof Kell top right then Prof Pretorious, then a group image of Dr Laubscher and Dr Kane and Dr Khan who are masked. The middle line has an image that says TEAM CLOTS then a photo of Dr Khan in sunglasses then a studio shot of Dr Dalton. The bottom line has a photo of Dr Kane then a text box that says 'Pioneers in biological science for Long Covid, then a group shot of Laubscher, Pretoriuos, Kane, Khan and Gez Medinger all in a restaurant.

Org

Team Clots

A group of researchers investigating clotting. Inclu. Prof Resia Pretorious, Prof Doug Kell, Dr Asad Khan, Dr Jaco Laubscher, Dr Caroline Dalton, Dr Binita Kane & Dr Rae Duncan.

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Org

Clean Air Classrooms

Led by Michelle Wong, CleanAir Classrooms give paradigm shifting practical advice for keeping education safe.

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The logo in monochrome for Independent Sage. It has a grey background with a black i _S

Org

Independent Sage

The archive videos and website for Indi Sage. Dealing with Long Covid, workplace safety, the clinically vulnerable & stats. Includes Danny Altmann, Binita Kane & Stephen Griffin.

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The monochrome logo for Patient Led research collaborative. It has 6 dots with intertwinining vs that form 6 edged shape. It looks like people holding hands in collaboration.

Patient Group

Patient-Led Research Collaborative

The group leading the way in the new paradigm. Patients with Long Covid pioneering the way in research, patient involvement.  Enabling patient-led biomedical research.

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Dr Weir and Dr Speight portrait photos in black and white. Both have glasses and short brown hair. The text says Dr Weir's East Devon Long Covid and ME Clinic drweirclinic@gmail.com

Drs

Dr Speight & Dr Weir

Recognised experts in ME/CFS. They  offer medical care & support for families going through unjust safeguarding proceedings. Dr Speight specialises in paediatrics.

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The monochrome logo for Tymes Trust. It is a stylsed dandelion with black white and grey seeds.

Org

Tymes Trust

Fearless charity standing for the rights of children & young people with ME. Offering clear guidance & support against harassment and FII misdiagnosis.

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The monochrome logo for Clinically Vulnerable Families. It is a heart with a circle above. It contains C & V shapes to represent CV families.

Org

Clinically Vulnerable Families

​Supporting Clinically Vulnerable households through advocacy, evidence based information, and our peer network. Working for a safe, equitable future

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The monochrome logo of Long Covid Physio.It is a stylsed coronovirus with spikes as circles pointing out. It has the image of a figure inside in white with a circle at the heart.

Org

Long COVID Physio

Pioneering group leading the way in how to manage Long Covid. If you or family need guidance on pacing & energy management.  Key in bringing safe rehab to the WHO & World Physio Guidelines.

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The monochrome logo of #MEACTION, it is contained in a dark circle in italic capitals.

Org

ME Action

An unparalled ME org based on direct action & consisting of a global grassroots network. Home to #StopRestPace & international protests for people with ME. One of the 1st  to be there for Long Covid.

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Counter Disinformation Project monochrome logo. It has lots of grey and black circles of varying sizes andthey are connected with lots of lines creating a network.

Org

Counter Disinformation Project

The leading source in the UK tracking and holding to account the network of disinformation especially in relation to children & schools. Fearless journalism.

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The monochrome logo of Physios for ME. It is a heart with the text Physios for ME in the heart.

Org

Physios For ME

A wonderful team that advocate, educate & research for safe rehab for people with ME & Long Covid. Aiming to improve physio management for people with PEM, post-exertional malaise.

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The monochrome image of MEpedia. It is a dark circle with the text #MEPEDIA filling the circle.

Wiki

MEpedia

Incredible resouce for anything ME related. The wiki of our community. A must for any advocate & patient. Over 3000 articles on treatments, people, symptoms & flaws of the BPS model.

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The monochrome image of The World Health Network. It has a globe made of lines connecting to dots in swooping curves. The bottom left is faded out and the text World Health Network in black is there.

Org

World Health Network

A collaborative global organisation looking to inspire change for a safer world. Focusing on a healthier & more compassionate world through science & collective action. One to investigate or volunteer for.

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Polybio logo it is the word bio with the o looking like a molecule

Org

PolyBio

One of the pioneering  organisations at the cutting edge of infection associated chronic condition research. Proactive, open minded & paradigm shifting. A group striving to get to the root cause

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The monochrome logo of Open Medicine Foundation. It is the Text shaped as a heart. OMF is on the top then with a line below there is the word HOPE with the O being a ribbon.

Research Org

OMF

Open Medicine Foundation funds open, collaborative research to discover treatments and a cure for ME/CFS and Long COVID. A true trailblazer in the biomedial research field.

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Bateman Horne Centre Monochrome logo it is series of 6 shapes that look like squares with wavy points. They look like birds flying in formation.

Centre of Excellence

Bateman Horne Centre

Excellent source of medical & patient education on ME/CFS, Long Covid & Fibromyalgia. A leader in the fields of biomedical research, clinical care & support

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Org

Safe Air Schools

A pioneer in advocating to improve air quality in schools. Helping to ensure safe, inclusive, sustainable education. LCA is proud to partner with this groundbreaking initiative.

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