We are pleased to welcome Dr Elke Hausmann as a guest writer and friend of Long Covid Advocacy. In this article she delves into the details and controversies of Emily Mendenhall’s new book ‘Invisible Illnesses’ with precision and acuity - providing a much needed analysis for the community.

Exulansis is defined as the tendency to give up trying to talk about an experience because people are unable to relate to it.

This is a bit more of a personal post - exciting but with a twist. Like Benton Fraser, in Due South (one for the Gen X’ers), we are having a temporary directional change with a new sister project, @cripademia and a book!

A Campaign Guide for the Bait and Switch Tactic

Whilst brain re-training programs are more universally recognised as being problematic in Long Covid and ME, these other psychological approaches often fly under the radar. It is important that we recognise them for what they are: medical gaslighting.

This article explores how cognitive therapies contribute to a dangerous medical paradigm for chronic illness. We shall focus on Paul, ‘he’s not the messiah, he’s a very naughty boy’, Garner’s opinion piece for the BMJ and his appearance at the SIRPA conference. We examine the historical, rhetorical, and systemic forces behind mind-body medicine and how they obscure harm through compassion-washing, concept laundering, and misplaced optimism.

They will tell you that it’s progressive, groundbreaking, science pioneering into unventured territory...

Report reveals systemic neglect, missing data, and vanishing services

Lessons learned 5 yrs after Lockdown

There is a long history of the most profound societal shifts coming from the grassroots, from people forming communities and campaigning...

We created a SPLASH guide (which is also relevant for ME and other chronic illnesses), which contains a few handy pointers

It’s one thing to go for help and not find any medical care. It’s another to be blamed for your child’s disability and illness.

Is Long Covid really PMS in teens?

On Thursday 28th November a new paper was released in The BMJ, recommending CBT and exercise for Long Covid...

It’s been over a year in the making. There’s been some blood, sweat, and tears. But, we made it, the LCA Shop is here and finally ready.

You might have noticed that there has been a mass exodus to Bluesky from Twitter since the US Presidential election.

Halloween is approaching, and we missed ‘hot girl summer’ so we are opting for ‘goth girl autumn’ instead with a cosy book club.

Tales of the Unexpected: A letter reaching out to Miranda Hart to discuss her book and approaches to ME, Long Covid and Lyme.

Hints and tips to stay safe and protect your digital life.

Rest, respite & the years adventures of Long Covid Advocacy