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Due South: An Exciting Development with a Twist
This is a bit more of a personal post - exciting but with a twist. Like Benton Fraser, in Due South (one for the Gen X’ers), we are having a temporary directional change with a new sister project, @cripademia and a book!
Sep 186 min read
'Who Wants Normal? A Disabled Girls' Guide to Life' by Frances Ryan
It is this communality of the book that elevates it, from practical tips to the message that one is not alone in the struggle.
Sep 135 min read
Not ALL in Your Head? Think Again
A Campaign Guide for the Bait and Switch Tactic
Jul 259 min read
The Danger of ‘Feeling Safe’: Long Covid and the Return of Psychosomatic Medicine
Whilst brain re-training programs are more universally recognised as being problematic in Long Covid and ME, these other psychological approaches often fly under the radar. It is important that we recognise them for what they are: medical gaslighting.
Jul 28 min read
Stocktake Unveiled: Uncovering NHS Inaction on Long Covid and ME/CFS
Report reveals systemic neglect, missing data, and vanishing services
Apr 96 min read
Make some noise for Long Covid Awareness month
There is a long history of the most profound societal shifts coming from the grassroots, from people forming communities and campaigning...
Feb 238 min read
How to Help Someone with Long Covid
We created a SPLASH guide (which is also relevant for ME and other chronic illnesses), which contains a few handy pointers
Feb 59 min read
The Blame Game: the rise in false allegations of maternal abuse in Long Covid and disability
It’s one thing to go for help and not find any medical care. It’s another to be blamed for your child’s disability and illness.
Jan 205 min read
Stacking the Deck - The systemic review recommending CBT & exercise for Long Covid.
On Thursday 28th November a new paper was released in The BMJ, recommending CBT and exercise for Long Covid...
Nov 29, 202416 min read
Navigating the Bluesky 101
You might have noticed that there has been a mass exodus to Bluesky from Twitter since the US Presidential election.
Nov 13, 20245 min read
The Pedantic Zebra Book Club
Halloween is approaching, and we missed ‘hot girl summer’ so we are opting for ‘goth girl autumn’ instead with a cosy book club.
Oct 29, 20243 min read
Dear Miranda,
Tales of the Unexpected: A letter reaching out to Miranda Hart to discuss her book and approaches to ME, Long Covid and Lyme.
Oct 17, 202427 min read
Online Security for the Disabled and Chronically Ill Community
Hints and tips to stay safe and protect your digital life.
Sep 18, 20249 min read
Down the Potting Shed
Rest, respite & the years adventures of Long Covid Advocacy
Jul 31, 20245 min read
Tin Foil Hat Territory? The Gupta Program, Lightning Process and the BPS in Long Covid and ME.
This response to the wide-ranging concerns about brain retraining such as the Gupta Program and Lightning Process aims to inform patients
Jun 28, 202422 min read
L.I.V.E.
Our mission - Legislate. Investigate. Ventilate. Educate.
Nov 22, 202311 min read
Free Downloads from LCA
Oh, what's occuring?
Nov 19, 20235 min read
A Very British Consultation...
LCA's response to the DHSC ME/CFS Delivery Plan...
Nov 14, 20238 min read
The Iceberg Effect - when Drs don't listen to patients
Response to the Guardian Hall article 'ME/CFS guidance that discourages exercise is flawed, says researchers' & JPPN misinformation
Sep 12, 202311 min read
Dear Society of Occupational Medicine, will you listen to people with M.E. and Long Covid?
Kirstie Sivapalan writes to the Society of Occupational Medicine about the mass blocking of pwME
Sep 12, 20237 min read
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